Still blogging with my three
co-bloggers! Each week, one of us chooses a topic and we all post a blog
entry on that topic, usually on Thursdays. (Usually we are on time.
Usually. Ok, mostly. Sometimes? Don’t judge me.)
Here are the links to the other fabulous
blogs:
This
week is a make up/free week. I
was going to make up a post I missed a few weeks ago, but something else is weighing on
my mind. So, I’m going to write
about that, instead.
I’ve
mentioned before that my 12 has autism.
Most of you know that we haven’t been super lucky getting help (known as
“services”) from the two school districts with which we’ve been involved since
her diagnosis at age 9. We fought
our last school district for a year and a half to even get her an IEP (her own
educational plan, including services like time with a social worker, math help,
etc.). Our first year in Tennessee
was much better; they transferred the IEP and gave Grace more services than she needed.
This
year? Did not go so well.
About six weeks ago, I realized they were not giving Grace her
math services. I started asking
questions of her math resource teacher (and her homeroom teacher) and got some
really unbelievable answers. Answers like, “I
don’t take attendance,” and “It’s her fault for not showing up.” Stuff like that. I saw the writing on the wall and
started calling educational advocates.
A law school friend told me to contact the Federally funded disability
advocacy/watchdog group for Tennessee.
Sadly, they took our case.
I say “sadly” because this means my daughter really was getting
shortchanged and we really had a problem.
This
past Tuesday, we had a meeting with the resource teacher and some other school
officials about the missed time.
To say they were unwelcoming would be a great understatement. Try unreasonable. Try defensive. Better yet, try nasty. Try hostile. Try “how dare you challenge us.” Try try try.
And then bite holes in your tongue as you maintain your civility while
they do not.
Here’s
where I want you to close your eyes and pretend you were there with my husband
and me. Listen to your child’s
resource teacher call your child a liar.
Listen to her blame your child (the one who is 12, the one who has
autism) for the resource teacher’s own mistakes. Listen to her voice fill with mild disgust as she makes a
comment under her breath about the number of last names in your blended
family. Even worse yet, listen to
your child’s homeroom teacher – the one your child loves so much, she wanted to
buy him two end-of-year-gifts; the one you met with repeatedly during the year; the one you
helped out in class on the day he taught the kids about arguing the other side
of something – deny the contents of a conversation you had with him about missed services. Feel your heart break. And then feel it absolutely shatter
when you have to tell your daughter about the meeting and she specifically asks
you if her teacher backed her up.
Tell me how you feel.
I
will tell you how I felt. I felt drained. Defeated. Unbelievably sad.
Now
imagine the next day, when you receive a phone call from the head of special
education for the district, and he tells you that they are going to give your
daughter some math assistance over the summer to make up for what was
missed. How do you think you would
feel?
You
all know I am an attorney. I have
won “cases” before. I once won an
outright reversal on an appeal; that happens in very few cases. I’ve been on teams that earned NGs in a
jury trial (“not guilty” – also rare).
Those victories were sweet.
We celebrated. We felt
good.
This
victory? Felt incredibly
hollow. At no point did it feel
like a “win,” even though in a sense it was, as it was adversarial, it was us against
the school district. Yes, we got
what we wanted, without even filing an administrative complaint (the next step). I felt relief, felt glad we would not
have to engage in a protracted battle.
But I did not feel victorious.
Now
I want you to imagine later that day.
Your daughter – the one who needs the extra assistance – is graduating
from the school. You spend an hour
and a half in the gymnasium staring at the principal (who was cc’d on all the emails with the
resource teacher and never once stepped up to help), staring at his assistant
(who was downright nasty during the meeting), staring at the homeroom teacher
(who had just betrayed not only your trust, but that of your child). Put your hand over your mouth to stop
yourself from laughing aloud when the guest speaker (the one who used to teach
at the school but left to become a realtor) talks about the importance of taking
ownership of your actions, of apologizing when you make a mistake. Take those feelings and mix them with
your feelings about watching your daughter graduate, the same ones every parent
has, plus the extra ones you have because she has had a higher mountain to
climb. Feel the lump in your
throat. Because there was one in
mine.
Listen,
now, as they give out achievement awards.
Realize as they announce the awards that, at the most, your child could
possibly qualify for one – Most Improved.
Know that she will not win that award, because she did not improve. Know that because of her challenges,
she will never win the Academic Award (because her math grade will always pull
her down) or the Citizenship Award (because her social skill struggles will
always make her seem aloof and sometimes even unfriendly). Try to imagine an award she could earn
and hope to God or the Universe that someday, she will at least have the
chance.
Now,
watch the video someone put together showing highlights of their last year of
school. See snippets of your child
here and there, in the classroom, on a field trip. See even more photos of that one group of girls who
are always together – the group your child was never part of because of that
social skills thing, even though you know she tried. And while you’re at it, try to tune out the song playing
with the video, I Hope You Dance,
because it always, always makes you cry.
Because your daughter always chooses to sit it out while the other girls always choose to dance.
Push
down all those feelings and head out of the gym. Ask your daughter if she wants a photo with her homeroom
teacher. Watch her struggle,
because she really does but she also really doesn’t. Tell her that she might regret not taking one, because
someday the positive memories might actually outweigh the negative. Say that to her even though the last
thing you want to do is look at her teacher, because you know you cannot speak
your heart, not now.
Take
the photo, anyway.
Go
home and try to wrap your mind around the past few days. And then remember what the guest
speaker said, not the part that made you laugh, the other part. The part about gratitude, about being
thankful and grateful for what you have.
Remember that your child is not winning an Achievement Award, but she is
verbal and able to attend a Gen Ed school. Remember that she has to work harder and you have to work
harder, but that you have the love and support of family and good friends and a kind advocate from the Federally funded advocacy organization to
hold you up and carry you through.
Remember that you are sitting in an elementary school gymnasium, and not
in a cancer hospital.
Remember,
then, that you have won, no matter
how much it feels like you haven’t.
Remember
. . . and then close your eyes and hope that someday, your daughter chooses to dance.